Thursday, September 27, 2007

Breast Cancer Fundraising events

Some upcoming Rochester area breast cancer fund raising events...........

Friday Night-
The proceeds for this event goes to SIS - Sensational In Survival. This organization provides funds to breast cancer patients who are having trouble paying their bills. The event looks like a lot of fun. It's called Chicks with Picks and is at the German House - a bunch of bands will play. Here is a link to the site. SIS Website

Sunday Morning -
Making Strides Against Breast Cancer 5K walk at Frontier Field. Some of us from Christy's Crew will be walking this 5K as a practice walk for our crazy 39.5 mile walk in May! You don't need to fund raise ahead of time - donations are, of course, welcome - at the time of sign-up. Here is the link to the site. Making Strides Against Breast Cancer 5K

October is breast cancer awareness month so more events to come.

Tuesday, September 25, 2007

Do not have Breast Cancer Gene

I just found out the results of my genetic testing.
I do not have the BRCA1 or BRCA2 gene - that can cause hereditary breast and ovarian cancer.
This is good news for my family and myself. With this news - I have no greater chance of getting Ovarian Cancer than the average woman (which I think is 1% chance). If I had the gene - I would have had a 30%+ chance of getting ovarian cancer. So - this eliminates that worry and eliminates the need for me to decide to remove my ovaries. Great!

Also - my sister, who was stressed about these results, also has no greater chance of getting breast or ovarian cancer. Same goes for our daughters. This is a huge relief for them! If they had the gene - they would have an 86% chance of developing breast cancer.

It still does not give me a root cause as to why I developed breast cancer, except that 1 in 7 women get breast cancer. Still unexplained as to why.

Now - there is still unexplained family history on my Dad's side. Either, there are other genetics we cannot test for, yet, or it's just luck of the draw. My Dad's sister and my Dad's cousin both are breast cancer survivors. So - as a family, we need to be aware and have increased screening for breast cancer.

Sunday, September 23, 2007

Out of the Funk - AGAIN

4th chemo crash day down! Halfway!
Friday was chemo crash day. It wasn't too bad - I actually think it would hve been the best one yet - had it not ben for my horrible head cold! I had an excrutiating sinus headache with congestion all day Friday. This horrible head cold continued into yesterday - so even though I had recovered from chemo, I had not recovered from my head cold. Today seems much better!

I have been fighting this cold for probably a month - and it finally took hold last weekend. The steroids that they gave me at chemo, Tuesday, seemed to put the symptoms at bay for Tues - Thurs. Weird. Then on Friday, the head cold picked up where it left off on Tuesday! I have no medical explanation for that (and maybe it's all in my head - pun) but that is how I describe it!

Thursday, September 20, 2007

East End Pub Crawl



No weekend plans yet ? This doesn't happen to be one of our Fundraisers, (not yet anyway) but it is still all of what we hold dear....Barhopping, cocktailing and raising Breast Cancer Awareness. Check out the link to Insider Magazine for the scoop. "Note to the fellas, Chicks dig sensitive and caring guys who wear something pink for the night..You can thank me later."

Jamie

2nd week of School update

Do you think Celia likes School ??? (waiting patiently for her ride)



Update

The cycle is the same as previous 3 cycles. I am back at work both yesterday and today.
Good news - today I could barely feel my lump in my breast! It shrunk that much since Tuesday. Mind you, I can still feel it - but it is considerably shrunk from just Tuesday's treatment! That is huge!

I have my genetics appointment next Tuesday September 25. After that, I will meet again with my surgeon to start determining surgery path forward and whether he needs to put a marker in to make sure we know where the tumor was / is prior to surgery in the event it keeps shrinking.

Kickin' my cancer's ass!

Christy

Tuesday, September 18, 2007

Half Way Done!

As of right now - I have completed 50% of my chemo treatments! Halfway done!
My blood counts were stellar once again, and the cold did not affect my ability to receive treatment. The physicians assistant asked me "are you up for chemo with your cold?". I said, "of course, this cold isn't going to stop me, this is the 50% mark!"

I met with my oncologist today, Dr. Brian Urineck. He said the tumor is shrinking (he measured it) so that is great news (but I can now feel it is shrinking). And starting next round - I will move to a new drug called Taxol. I don't need any anti-nausea meds for Taxol. I made him promise me - that I would not puke without them, because what I have now works, and I don't want to mess with that! He said - he can never say never, but.....I could be the one person who pukes from Taxol. Unlikely. The side effects for Taxol are the numbness / tingling in the fingers and toes. And also muscle aches. If the side effects are too much, then they will switch the dosing from once every 2 weeks to once a week with a smaller dose for 9 weeks. I hope not to have to do that, because it extends my time line past Thanksgiving, but I will do what I have to do to get through - cross that bridge when I get there!

My friend, Kristin Cutright Sumner, came with me today. We had a great time! We watched "Devil Wears Prada" on Kristin's computer. Good movie!

That's all for now!

Halfway done! Woo hoo!!!!!!!!!!!!!!!!!!!!!

Monday, September 17, 2007

a story

This story was sent to me by my friend Jackie Bense.
I thought it was fitting. Not because I am this person John - I am not always THAT positive (most of the time, but certainly not always!). In my take on the breast cancer situation - I have always said - "Death is not an option right now" - I choose to live. Hence, my attitude toward how I am handling having breast cancer. And, given how well I feel during treatments - "attitude is everything"!

Just thought the story was fitting - given I am walking into treatment #4! Thanks Jackie!



John is the kind of guy you love to hate. He is always in a good mood and always has something positive to say. When someone would ask him how he was doing, he would reply, "If I were any better, I would be twins"
He was a natural motivator.If an employee was having a bad day, John was there telling the employee how to look on the positive side of the situation.
Seeing this style really made me curious, so one day I went up and asked him, "I don't get it!You can't be a positive person all of the time. How do you do it?"He replied, "Each morning I wake up and say to myself, you have two choices today. You can choose to be in a good mood or ... you can choose to be in a bad mood I choose to be in a good mood."
Each time something bad happens, I can choose to be a victim or...I can choose to learn from it. I choose to learn from it.
Every time someone comes to me complaining, I can choose to accept their complaining or... I can point out the positive side of life. I choose the positive side of life.
"Yeah, right, it's not that easy," I protested."
Yes, it is," he said. "Life is all about choices. When you cut away all the junk, every situation is a choice. You choose how you react to situations. You choose how people affect your mood.You choose to be in a good mood or bad mood. The bottom line: It's your choice how you live your life."
I reflected on what he said. Soon hereafter, I left the Tower Industry to start my own business. We lost touch, but I often thought about him when I made a choice about life instead of reacting to it.
Several years later, I heard that he was involved in a serious accident, falling some 60 feet from a communications tower.After 18 hours of surgery and weeks of intensive care, he was released from the hospital with rods placed in his back.
I saw him about six months after the accident.When I asked him how he was, he replied, "If I were any better, I'd be twins...Wanna see my scars?"I declined to see his wounds, but I did ask him what had gone through his mind as the accident took place.
"The first thing that went through my mind was the well-being of my soon-to-be born daughter," he replied. "Then, as I lay on the ground, I remembered that I had two choices: I could choose to live or...I could choose to die. I chose to live."
"Weren't you scared? Did you lose consciousness?" I asked
He continued, "..the paramedics were great.They kept telling me I was going to be fine. But when they wheeled me into the ER and I saw the expressions on the faces of the doctors and nurses, I got really scared. In their eyes, I read 'he's a dead man'. I knew I needed to take action."
"What did you do?" I asked."Well, there was a big burly nurse shouting questions at me," said John. "She asked if I was allergic to anything 'Yes, I replied.' The doctors and nurses stopped working as they waited for my reply. I took a deep breath and yelled, 'GRAVITY'!"
Over their laughter, I told them, "I am choosing to live. Operate on me as if I am alive, not dead."
He lived, thanks to the skill of his doctors, but also because of his amazing attitude... I learned from him that every day we have the choice to live fully.
Attitude, after all, is everything
Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.After all today is the tomorrow you worried about yesterday.

Here's to tomorrow!

I am quite psyched for tomorrow!
As long as my counts are good (I have a nasty head cold!), I should be getting my 4th chemo treatment tomorrow. Once done - I will have completed 50% of my treatments! This will also be the last treatment of the AC cocktail that I have been getting (of which I am told, is the hardest to handle due to the side effects). I'll probably learn more tomorrow - but the next round of treatments is a drug called Taxol (?). There are 4 of those every 2 weeks.

I really am excited! It is hard to believe that I am already 50% of the way done! That is huge!

Christy

Thursday, September 13, 2007

Me - in case anyone wants to know

By the way - I am feeling completely normal this week. Same pattern.
The only side effect this week is that I have no hair! I feel totally fine. Which is awesome.
And we are really having fun with no hair -
I now have some newsboy caps that I also wear. I have a different look every day! People at work can't wait to see what look I show up with! Wig, scarf, hat, bandana........

Even last night - I showed the neighbor kids my wigs. A few were confused, they have seen me with no hair in the evenings. Last night, I had one of the wigs on. Conner and Morgan both said to their mom's "Christy's hair grew back really fast!"..................

So - to clear up their confusion. I took the wig off, showed them my bald head and put the wig on. They then understood the whole "wig thing". Poor kids - I think they thought I was an alien or something!

More First Day of School Pix






















Here's a couple more first day of school pix.............

Celia is still really enjoying school!
Remember - Celia was so excited about going, she did not want to waste time sitting for the first day of school pix! Celia is a pistol - when she doesn't want to do something, we know it! But - we torture her taking pictures anyway! Hence the frown in the middle picture. Oh well.

I still don't know what they do at school everyday. She volunteers very little info.

Yesterday I asked her what she did at school, she said "nothing, we did not go to the playground". She sounded happy (not complaining). So I continue
Mom said "did you do a craft?"
Celia said "no"
Mom "did you read books?"
Celia "no"
Mom "did you go to the bathroom?"
Celia "no"
Mom "did you play in the classroom?"
Celia "no"
Mom " so you literally did nothing?!"
Celia "we sang and that's all"
Mom "OK"

I tell ya - why I bother finding out! To give her a break - I was on the phone with her during this conversation and she was watching cartoons with some friends as I was talking. Maybe - I was set-up for no info...............

If I get no info at age 4 - what little info am I going to get at age 14?! I just can't wait!

It's all just funny to me. She loves going to school. And that's all that matters.

Celia's Dance Class


Celia attended her first dance class last Saturday.
This is a milestone for us all.................
All summer we put Celia into classes (T-Ball, Lacrosse). She was excited about these classes at first but after the first or second session of either TBall or Lacrosse, she claimed they were "boy" sports and it was too boring. Or her legs were too tired. Or she had to go to the bathroom during class to kill time. She would fight with us to even go. But, we wanted to give her a chance to experience all types of activities, so we kept her going.

All along, she said she wanted to do dance class and cheerleading class. So, this fall, I signed her up for dance at the T.A.D.A. - Tammy Allen Dance Academy in Victor. I bought her a black leotard and tights, ballet shoes, (still looking for tap shoes). She loves the outfit! Wants to wear it all the time.

She participated in this class like I've never seen her participate before! She smiled from ear to ear the entire time. Danced like crazy, did somersaults and even tried (without giving up) to do cartwheels! Never once did she have to go to the bathroom, cling to Mommy, or have tired legs - this class was a full hour! I think we found her passion! I was so happy to see how happy she was! It was just too cute!

But - this tells me - we now have all the fun 5 hour dance recitals ahead of us! Ugh!

And for Jamie's sake - CJ at least seems to have great interest in TBall and Lacrosse and hockey, etc. So - Jamie still has hope for a sports child!

Tuesday, September 11, 2007

First Day of School - recap

Here's on picture of Celia's first day of school. More to come. This is Celia with her neighbor friend, Conner. They are in the same class. The picture is too cute! The headband was a last minute decision by Celia (it was in the car) and I could not start an argument for fear she wouldn't go into the classroom if she were angry......so the headband stayed!

The day went well. She was dressed and ready for school by 8:30am (her class doesn't start until 12:45pm). She was so excited when I got home at Noon to take her to school. She did not even want to sit for pictures before we left. I dropped her off in her classroom, she put her book bag in her cubbie, found her name tag and sat down at a table to play blocks with Conner and I left - no problems (we think). Some kids started to cry when we were in the hall - we decided to keep on walking! Celia and Conner claim no one cried..........hmmmm

Jamie picked her up from school, asked how her day was and she said "Daddy, Noooooooo, I'm not gonna talk about it!" Full of typical Celia attitude. At dinner, I did get tidbits of info.....she talked about the cleanup song and a little girl in her class that has pierced ears! Kristin (Conner's Mom) got as little info about school as we did. She heard that they read a book about a pig and that there were toy tractors in the classroom. Even though I have little info on the goings on in school - Celia did announce at dinner that she had a wonderful day!

And she has already decided what outfit she will wear today! I guess she wants to go back!

Monday, September 10, 2007

First Day of School

Today is Celia's first day of Pre-K at the Victor Schools!
She is very excited and has had her outfit all picked out for days! We will take pictures and post at the end of the day. I am excited because I work so close to home, that I can easily leave at Noon to get Celia and bring her in for her first day of school. She will be there from 12:45pm-3:15pm. EVERYDAY!

Also - I am back to normal again. Same pattern - I started pulling out of the funk on Saturday and by Sat afternoon - I was fine. Great News!

More posts to come: The success of Victor Days, Celia's Dance Class, My Mom's Visit.
I have been behind in posting - we have been busy with my Mom in town.

Christy

Friday, September 7, 2007

3rd Chemo crash day down!

Another crash day bites the dust!
Not too bad today - I lay low, watch some TV, rest (not really sleep) and now it's evening, I had some pizza and a much needed Diet Pepsi (no coffee this AM) and I feel pretty OK.

Even my Mom thought I seemed to be in pretty good shape for a "bad" day.

It has been a little busy at the house today (it's hard not to notice all the pink fundraising activities going on around me - for Hang Around Victor Days tomorrow). Check out Kristin's blog for the details!

Celia met her teacher today - and had a great time. The school and classroom are great! She is so excited to start school! And we are too!

She also went to pick out her backpack with her Nana today. She go this really cute My Little Pony Backpack (it's a large one - per the teachers instructions!). She is thrilled with it! Thanks Nana!


Let it all Hang Out in Victor

Blog entry courtesy of Kristin Williams, the Queen of all Fundraisers



Christy's CREW is all ready for Hang Around Victor Day tomorrow!!! I swear as a tom boy and as a mother of two boys there has NEVER, EVER, EVER, been this much pink in my house EVER!! But I love it. I think pink may be my color!

Anyway, we are all set to go tomorrow, so PLEASE come by our booth tomorrow outside my San Souci Jewelers right on Main St. in Victor between 9:00-5:00 pm. If you don't know where that is...just look for the BIG pink ribbon balloons!

Come get a breast cancer awareness cookie, free lemonade, key chains, ribbons, bracelets (we hope!), and lots of hand made goodies from many of Christy's family members! There will be so much going on....

Rumor has it that you might even find Jamie or my husband Chris in a PINK feather boa in the middle of Main Street holding a PINK feather donation bucket!!



GO CREW!!!

Thursday, September 6, 2007

Thursday after round 3

Sorry - I did not post yesterday!
I have been back to work, yesterday and today. Yesterday ws a really busy day at work.

Good News: the doctor at Pluta said that my tumor has gotten "soft" which is the first step to shrinking! And my OB/GYN yesterday at my annual appt. thought the same thing! Woo hoo!

I was more tired than the other 2 treatments yesterday, but feel quite good today. Not tired! Now, tomorrow is the rough day, and I plan to take the day off work to rest.

My Mom is here until Sunday - and she has been very helpful with the kids and the house this week, and allowing Jamie to get out and run some errands without the kids in tow. Which is a huge help to Jamie!

Celia has her back to school, meet the teacher tomorrow. And her first day of school is on Monday - Pre-K at the Victor Schools, 5 afternoons a week! She is so excited! No school bus until next year (Kindergarten) - she really cannot wait to ride the school bus!

All is well - Kickin' my cancer's ass!

Christy

Tuesday, September 4, 2007

3 done!




Yeah!
My blood counts were excellent and I got my third round of chemo today!
Only one more of this drug combo and one more to the halfway mark! That's huge!

My red cell counts dropped from the last time from 34 to 32. The red cells are the ones that when low - cause iron deficiency and fatigue. When they hit 30 - the doctor will put me on Procrit (a drug to raise red blood cell counts). Given I did not feel fatigued this time around with lower red blood cells - Procrit will probably give me huge energy! hee hee
My white cell counts and platelet counts were all high!

As long as my cold does not turn into a fever - I am good to go.

My Mom seemed to enjoy her experience and handled it well! Jamie showed up to hang out for a while too. So - all in all, it was a good day.

So psyched - 3 down!

Christy



Third time's a charm?!

Well - at least after today I will be 3 down - almost halfway done!
Bring it on! Let's kick-ass again!

My only concern for treatment today is that I still have my cold. It's slight with an annoying dry cough, but I do still have a sore throat. I REALLY hope they still allow me to get chemo today, even with my cold. In all honesty, I have no idea if having this cold will have any bearing on treatment - most likely they will draw my blood for white cell counts and make the decision from there.

My Mom is coming with me today. I hope it's not too hard for her, as this diagnosis has been very difficult on her. But, she is here this week to help and to experience the process with me. And this is what she needs to do, as a mother, I can understand that.

We'll go have breakfast first, and then off to Pluta for a 9:30am appt.

More to come later!

Hope everyone enjoyed their Labor Day weekend! I know we did!

Christy